Trisomy 18 Advocacy: For the Love of Harley Foundation
Recent Foundation News
6/23/2026
In honor of Harley's 10th birthday, the For the Love of Harley Foundation presented a donation to the Child and Family Life Program at C.S. Mott Children's Hospital. During our visit, we also provided lunch for the Pediatric Intensive Care Unit staff and donated toys and activities to Child Life.
Every gift made to the Foundation helps us continue supporting children with Trisomy 18, their families, and the medical professionals who care for them.
We are grateful to partner with the C.S. Mott Children's Hospital to support children and families affected by Trisomy 18.
Programs
Gas Card Assistance Program
Helping Families Reach the Care Their Children Need
When a child has Trisomy 18, specialized medical care often requires families to travel long distances. The cost of fuel can quickly become another source of stress during an already difficult time.
The For the Love of Harley Foundation Gas Card Assistance Program provides prepaid gas cards to help ease the financial burden of traveling to appointments at the Trisomy 18 Clinic at C.S. Mott Children's Hospital.
Our goal is simple:
To help families focus on their child, not the cost of getting there.
Who is Eligible?
At this time, assistance is available to:
- Families of children with Trisomy 18
- Receiving care through the Trisomy 18 Clinic at C.S. Mott Children's Hospital
- Referred through one of our trusted referral partners
Assistance is provided based on available funding.
How the Program Works
- A trusted referral partner identifies a family that may benefit.
- The Foundation reviews the referral.
- If approved, a prepaid gas card is mailed directly to the family.
Our referral process is designed to be simple, respectful, and protect each family's privacy.
Privacy
We understand that every family's situation is unique.
All referrals and information received by the Foundation are kept confidential and used only for administering this program.
Questions?
About For the Love of Harley Foundation
Our Mission
Our Mission
Our Mission
For the Love of Harley Foundation was established to honor Harley’s life by supporting children diagnosed with Trisomy 18. Through partnerships with medical professionals and healthcare institutions, the foundation works to support the care, treatment, and research that bring hope and compassion to children and families affected by Trisomy 18.
Our History
Our Mission
Our Mission
The For the Love of Harley Foundation was established in 2026 to honor the life and legacy of Harley, whose strength and spirit touched everyone who knew her.
Harley was born on June 23, 2016. Before her birth, her family learned that she had been diagnosed with Trisomy 18. From the very beginning, Harley brought joy to those around her a
The For the Love of Harley Foundation was established in 2026 to honor the life and legacy of Harley, whose strength and spirit touched everyone who knew her.
Harley was born on June 23, 2016. Before her birth, her family learned that she had been diagnosed with Trisomy 18. From the very beginning, Harley brought joy to those around her and was known for her beautiful red hair, bright smile, and contagious laughter.
Following Harley’s passing in 2025, her family and supporters were inspired to create the For the Love of Harley Foundation. The foundation was formed to carry forward Harley’s legacy by helping children diagnosed with Trisomy 18 and supporting the medical professionals, institutions, and research dedicated to their care and treatment.
Today, the foundation is guided by a committed board and a growing community of supporters who share the mission of honoring Harley’s life by bringing hope, support, and awareness to families affected by Trisomy 18.
Our Team
Our Mission
Our Team
The For the Love of Harley Foundation is guided by a dedicated board of family members, professionals, and supporters who share a commitment to honoring Harley’s life and supporting children diagnosed with Trisomy 18.
John Hart
Co-Founder & President
John Hart is the co-founder and president of the For the Love of Harley Foundation and the f
The For the Love of Harley Foundation is guided by a dedicated board of family members, professionals, and supporters who share a commitment to honoring Harley’s life and supporting children diagnosed with Trisomy 18.
John Hart
Co-Founder & President
John Hart is the co-founder and president of the For the Love of Harley Foundation and the father of Harley. Following Harley’s life and legacy, John helped establish the foundation in 2026 to honor her memory and support children diagnosed with Trisomy 18.
John has been actively involved in the Trisomy 18 community and is committed to advancing awareness and support for families facing this diagnosis. Prior to founding the organization, he served as a fire and EMS professional, dedicating his career to helping others in times of need. Through the foundation, John continues that commitment by working to support the medical professionals, institutions, and research focused on improving care and outcomes for children with Trisomy 18.
Jill Hart
Co-Founder, Vice President & Secretary
Jill Hart is the co-founder, vice president, and secretary of the For the Love of Harley Foundation and the mother of Harley. Together with her family, she helped establish the foundation in 2026 to honor Harley’s life and legacy.
Before Harley’s passing, Jill dedicated herself fully to Harley’s care, advocating for her and supporting her through the challenges associated with Trisomy 18. Through the foundation, Jill continues to carry forward Harley’s legacy by supporting children with Trisomy 18 and the medical professionals and institutions who care for them.
Morgan Bramlett
Board Member & Treasurer
Morgan Bramlett serves as a board member and treasurer for the For the Love of Harley Foundation. A speech-language pathologist, Morgan had the privilege of working with and treating Harley during her life.
Her professional experience caring for children and her personal connection to Harley provide a meaningful perspective to the foundation’s mission. Morgan is committed to supporting efforts that improve care and opportunities for children diagnosed with Trisomy 18.
Amanda Trojan
Board Member
Amanda Trojan is a board member of the For the Love of Harley Foundation and a parent of a child diagnosed with Trisomy 18. Her personal experience brings valuable insight and compassion to the foundation’s work.
As a marketing professional, Amanda also contributes her expertise in communication and outreach to help grow awareness of the foundation’s mission and support families affected by Trisomy 18.
LuAnne Houserman
Board Member
LuAnne Houserman serves as a board member of the For the Love of Harley Foundation. As Harley’s godmother and a close family friend, she has been a dedicated supporter of Harley and the Hart family.
LuAnne brings her strong personal connection and commitment to the foundation’s mission, helping ensure Harley’s legacy continues to inspire compassion, support, and hope for children and families affected by Trisomy 18.